 |
It's described as a proposed patient-led initiative using a blockchain-based decentralized registry to crowdsource real-time, real-world outcomes data from terminal patients and clinics worldwide. The focus is on off-label/experimental protocols to speed up breakthroughs in curing life-threatening diseases. It stresses patient data ownership via secure vaults, privacy protection, Remembering different countries have different protocols for such treatments. What are the issues and roadblocks to getting this data into a collective that can act on the medical data without prejudice. |
